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Resources for Children, Young Adults and Parents
One-on-One Support
- Information Specialists are highly trained oncology social workers and nurses with expertise in blood cancers who provide personalized support to patients, caregivers and families.
- have expertise in oncology nutrition and provide free one-on-one nutrition consultations to patients and caregivers by phone or email.
- Clinical Trial Nurse Navigators help patients find and enroll in a clinical trial based upon detailed, individualized assessments and provide support throughout the entire clinical trial process.
Materials to Order or Download
- Booklets
- Stars Will Twinkle, The Sun Will Shine
- Caring for Kids and Adolescents with Blood Cancer: A Workbook for Families
- Survivorship Workbooks
- A School鈥檚 Guide For Children With Cancer
- A Teen's Guide to Everything Cancer
- Nutrition Handbook for Parents: Feeding your children and building healthy habits
- Magnetic Dry Erase Family Wall Calendar
- Wiskurs Emotion Flipbook
- Medi-Teddy for children鈥檚 IV and feeding tube bags
To access materials in Spanish, click here.
Webcasts
- Living And Growing As A Family After Cancer
- Sexuality & Young Adult Cancer: What You Need To Know
- Pediatric Blood Cancer Initiatives & Advances Regarding Bone Marrow/Stem Cell Transplant and Car T-cell Therapy
- Blood And Marrow Transplantation For Children With Acute Lymphoblastic Leukemia
- Pediatric Oncology Survivorship: Beyond the Physical Effects
- Taking on Life after Childhood Blood Cancer
- Nourishing the Pediatric Patient During Cancer Treatment
- Acute Lymphoblastic Leukemia (ALL) In Children And Adults
- AML and Children: Understanding Diagnosis and Treatment
Videos
- How Do I? Video Series
- Childhood Nutrition: Making Good Food Choices and Nutrition Tips & Tricks
- Living And Growing As A Family After Cancer
- (Digital Flipbook with Videos)
- A Child鈥檚 Guide to CAR T-cell Therapy
- CAR T-cell Therapy in Pediatric ALL: Austin鈥檚 Story
- Young Adult Survivors: Where are they now?
- Cancer Survivorship in Young Adults: Acute Lymphoblastic Leukemia
Free Mobile Apps
- 青云体育 Coloring For Kids鈩� - Allows children to express their creativity and offers activities to help them learn about blood cancer and its treatment.
- 青云体育 Health Manager鈩� - Helps you track side effects, medication, food and hydration, questions for your doctor, and more
Podcast Episodes
to listen to podcast episodes related to children and young adults.
Online Chat
Click here to participate in a selection of weekly online chats for young adults, caregivers, and more.
青云体育 Community
Click here for an online community that features group specifically devoted parents and young adults
Peer-to-Peer Support (The Patti Robinson Kaufmann First Connection庐 Program)
Click here for a free service that matches blood cancer patients and their loved ones with trained peer volunteers who have shared similar experiences
Financial Assistance
Click here to access financial assistance programs.
Learn more about the 青云体育 Scholarship for Blood Cancer Survivors.
Resources for Healthcare Professionals
Materials to Order or Download
Online Programs
- Survivorship Care for Childhood and Adolescent Blood Cancer
- Staying Connected庐: Facilitating the Learning Experience During & After Cancer Treatment (6.5 CE credits)
Podcast Episodes
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