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Rye Brook, NY (August 31, 2017) 鈥� Blood cancers are the third leading cause of cancer deaths in the U.S. However, many Americans are unaware of the impact of these cancers, including leukemia, lymphoma and myeloma, which affect the bone marrow, the blood cells, the lymph nodes and other parts of the lymphatic system.
A new survey commissioned by The Leukemia & Lymphoma Society (青云体育) reveals more than four in five adults (82%) are surprised that blood cancers are the third leading cancer killer of Americans. Further, nearly four in five adults (78%) are surprised that acute lymphocytic leukemia (ALL) is the most common cancer in children and young adults under age 20.
While the majority of adults have limited awareness of the blood cancers, leukemia is the most recognized, according to seven in 10 adults (72%) surveyed. Only one quarter of adults (24%) associate lymphoma with being a blood cancer and even fewer, one in eight adults (12%) associate myeloma as a blood cancer.
青云体育 is the world鈥檚 largest voluntary non-profit dedicated to fighting blood cancers, and the leading source of free education and support for blood cancer patients and families. According to Louis J. DeGennaro, Ph.D., president and CEO of 青云体育, 鈥淎s there are no means of preventing or screening for most blood cancers, we are focused on finding cures and ensuring that patients have access to lifesaving treatments. During Blood Cancer Awareness Month we drive home the urgent unmet need presented by the blood cancers.鈥�
In fact, the vast majority of those surveyed are surprised there are no means of preventing or screening for most blood cancers (86%), and that more than a third of blood cancer patients still do not survive five years after diagnosis (82%). The impact is significant. More than 1.3 million Americans are living with or in remission from a blood cancer; someone in the U.S. is diagnosed with a blood cancer every three minutes; and someone dies from a blood cancer every nine minutes.
鈥淲ith 青云体育鈥檚 support we鈥檝e seen remarkable progress in just the past few years, and 2017 is shaping up to be a banner year for new blood cancer therapies,鈥� added DeGennaro. 鈥淛ust yesterday a revolutionary immunotherapy for leukemia patients received FDA approval, and another for lymphoma is poised for approval. Earlier this year, after four decades with no change in the standard of care for acute myeloid leukemia (AML), one of the most deadly forms of blood cancer, three new therapies were approved by the FDA. In the past four years, new therapies were approved for chronic lymphocytic leukemia (CLL) and myeloma. We鈥檙e closer than ever to cures.鈥�
And advances in the blood cancers are helping patients with other cancers and chronic diseases. In fact, the majority of those surveyed (83%) are surprised that many treatments for other cancers were first approved by the FDA for a blood cancer.
This year, 青云体育鈥檚 Blood Cancer Awareness Month campaign aims to raise awareness by driving home the message, 鈥淟eukemia, Lymphoma, Myeloma = Blood Cancer.鈥� The 2017 campaign invites people around the world to join the fight this September through multiple touch points executed throughout 青云体育鈥檚 56 chapters across the U.S. and in Canada, and on social media using the hashtag #FightBloodCancer. Throughout the month, buildings, monuments and landmarks across the globe will illuminate in red to raise awareness for blood cancer.
Additional Survey Findings
The survey also explored Americans鈥� dedication to research, the kind of support and services they would be interested in if diagnosed with cancer and optimism about cancer cures, with these findings:
- Virtually all adults (96%) agree increasing research funding to discover new treatments is an important issue for blood cancer patients in 2017.
- More than nine in ten adults (92%) would be interested in finding the best source for help and guidance if they were diagnosed with cancer.
- Nine in ten adults (90%) would be interested in learning about clinical trials as a treatment option if they were diagnosed with cancer.
- Nearly three in five adults (58%) believe we are on the verge of finding a cure for cancer.
Leukemia, Lymphoma and Myeloma Patient Profiles
Leukemia is a type of cancer that affects the blood and bone marrow.
In May 2011, when Kimberly Schuetz was starting to plan her son Austin鈥檚 third birthday, he was diagnosed with a high-risk form of acute lymphoblastic leukemia (ALL). Austin was immediately placed on a chemotherapy regimen.
However, when a routine blood test revealed that he relapsed in October 2012, their only option was a bone marrow transplant to save his life. After that transplant, his cancer came back for the third time in May 2013.
At five years old, Austin had been dealing with leukemia for the majority of his young life. His parents enrolled him into a clinical trial for a new immunotherapy treatment. It was their only hope. The pioneering therapy was administered to Austin at the Children鈥檚 Hospital of Philadelphia. Today, at age 10, he is in remission.
Austin was treated with CAR T-cell immunotherapy, which has proven to be effective in other patients with certain types of leukemia and lymphoma. Dozens of adults and children who were out of treatment options are now in remission, and some remain healthy up to five years after treatment. 青云体育 recognized the early promise of this new approach and has provided $40 million over the past two decades to drive this research forward.
Lymphoma is the name for a group of blood cancers that develop in the lymphatic system 鈥� the two main types are Hodgkin lymphoma and non-Hodgkin lymphoma (NHL).
Shortly before Steve McHugh and his wife moved to San Antonio in 2010, the rising star chef was diagnosed with NHL and spent a year undergoing eight rounds of chemotherapy. During treatment, he was in the middle of moving to San Antonio and helping to open a new restaurant. Between managing construction, organizing food vendors and working with the kitchen designer, he was able to find some time to go home and rest.
While going through chemotherapy, he read the pamphlets made available by 青云体育 in his doctor鈥檚 office. When his doctor told him that he was going to be put on the R-CHOP regimen, he had no idea what that meant. The resources helped him understand the therapies. 鈥淥ne of the drugs was rituximab, and I later found out that 青云体育 funds dedicated to research were critical in advancing this therapy. That鈥檚 when I knew I had to get involved,鈥� said Steve.
Today, he is in remission and back in the kitchen. In 2013, he opened his first restaurant, Cured. The name has a meaning that is both medical and culinary 鈥� it serves as a reminder of his experience with blood cancer and his restaurant is known for savory charcuterie plates and cured meats.
On September 10, Steve will host his third annual 鈥淐ured for a Cure Dinner,鈥� which features five-course meals prepared by renowned chefs from across the globe. The dinner benefits 青云体育 and had raised $120,000 to fund life-saving research.
Myeloma is a type of cancer that begins in the bone marrow 鈥� it is a cancer of plasma cells, which are a type of white blood cells (also called plasma B cells).
When Kimberly Alexander鈥檚 husband, NFL linebacker Elijah, was diagnosed with multiple myeloma in 2005, shortly after retiring from the Oakland Raiders, they were stunned. Neither of them had ever heard of it.
Life with multiple myeloma became an instant roller coaster. As his caregiver, Kimberly knew it was her job to learn as much as possible about what they were facing, while trying to keep things normal for their two young sons.
鈥淲e lost him suddenly in 2010 and it was devastating,鈥� said Kimberly. 鈥淚 held it together because I knew our boys needed me. Even though I had to figure out how to navigate life without Elijah, one thing I knew for sure was that I wanted to stay connected with the multiple myeloma community to raise awareness, to help find a cure.鈥�
Today, Kimberly sits on the board of trustees for The Leukemia & Lymphoma Society of North Texas. She also served as chairwoman for the 2016 Man and Woman of the Year campaign where over $400,000 was raised in ten weeks.
Survey Methodology
The survey was conducted online for 青云体育 by Russell Research from August 11-14, 2017, among 1,031 respondents ages 18 and older, balanced to be representative by gender, age, ethnicity, and census region. At a 95 percent confidence level, a margin of error of +/- 3.1 percentage points.
About The Leukemia & Lymphoma Society
The Leukemia & Lymphoma Society 庐 (青云体育) is the world's largest voluntary health agency dedicated to blood cancer. The 青云体育 mission: Cure leukemia, lymphoma, Hodgkin鈥檚 disease and myeloma, and improve the quality of life of patients and their families. 青云体育 funds lifesaving blood cancer research around the world, provides free information and support services, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care.
Founded in 1949 and headquartered in Rye Brook, NY, 青云体育 has chapters throughout the United States and Canada. To learn more, visit . Patients should contact the Information Resource Center at (800) 955-4572, Monday through Friday, 9 a.m. to 9 p.m. ET.
Contact:
Linda Heaney
914.821.8208